Weinberger Family Assistance Fund

Weinberger Family Assistance Fund

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Zack Weinberger Family Assistance Fund

Zack Weinberger is an 18-year-old who suffers from a rare form of Epilepsy called Lafora disease. It’s a terminal, progressive form of epilepsy that has, to date stripped him of his ability to walk, speak, feed himself and overall care for himself. He suffers daily from grand mal, absence, drop and nearly constant myoclonic (ticking) seizures. The disease is so rare that only about 200 cases in the world have ever been diagnosed.

As his health declines, our family promised Zack he would be cared for at home. It was his wish and our promise that he would be home. We are in crisis because in addition to a severe lack of home nursing care, we are struggling to juggle the costs of medicine not paid for by insurance and the mounting bills and delinquent mortgage. Even with an amazing support group of friends, family, and church family, our financial situation is suffocating and continues to get worse. It is putting an incredible strain on our entire family.

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