He was then diagnosed with L1 syndrome which is a rare genetic disorder. He has undergone 16 surgeries in his nine years. Six of those surgeries were in the first six months. He now wears braces on both feet as well as hand braces on both hands. He is primarily g-tube fed. He is non-verbal, has a shunt and baclofen pump and he does not walk, but thankfully that’s not everything.
Brayden is a very social young boy. He loves his school and his church. He signs some words and uses a communication device. He loves to watch and learn from his sister & friends and he can never give out enough hugs. His wheelchair is something he loves, its security for him and he’s done very well maneuvering himself around. Now at the age of nine and 58 lbs. the challenge has increased for us in getting him around. He and his wheelchair are heavy, so our next step is to get a wheelchair accessible van.